Saturday, July 31, 2010

She's up and around

I was able to spend some time with Eve today. While she's still pretty wiped out, she was able to make one lap around the nurses station, despite some lingering numbness in her leg.

I was there with her mom and friend from Spain, Alejandro. We talked and joked with her as she faded in and out of the conversation. She's not laughing yet, but we did see evidence of a few smirks. I know she's reading your posts to this blog. So if you have some time today, please leave her a note of encouragement--and let's see if we can get that smirch to a smile!

Thursday, July 29, 2010

A private room for Eve

Eve's been pretty sleepy today. She'd lost a good amount of blood during the surgery yesterday, so early this morning she had a blood transfusion. After two units of blood, Eve's doing better and hopes to be up walking around tomorrow.

She was moved today to a private room (339), still on Floor E3. She's expected to be released early next week. If you would like to participate in the Meal Train for her, please contact Wendy Spader at wspander@yahoo.com. Thank you, Wendy, for again organizing this huge blessing for the family.

Wednesday, July 28, 2010

Eve's out of surgery

After a long surgery this afternoon, Eve is just leaving recovery and settling into her room--which is on Floor E3, Room 332B at Stanford Hospital.

During the course of the afternoon, the surgeons removed two tumors from Eve's abdomen. One was at the initial surgery site in her colon and had grown outside to her vagina. The other was on the outside of her colon near her where it connects to the small intestine.

She has been given an ostomy bag, which they anticipate being able to reverse in three months or so.

Eve is still pretty out of it at this point. I'm sure she'll appreciate your on-going thoughts and prayers--and comments here to cheer her up. I'll provide you with more information as it becomes available.

Tuesday, July 27, 2010

Time of Surgery - Get Those Prayers Ready!

My time of surgery has been confirmed - it will be at 12:15 pm (PST). It should last between 2-3 hours. Please feel free to concentrate those wonderful prayers then!

Thanks again for all of your lovely healing thoughts. If prayer really does make a difference in a person's outcome (which is what the studies say) - then I'm going to be in phenomenal shape post surgery thanks to all of you and your friends.

Monday, July 26, 2010

Back from Brazil & Prayers for Wednesday

I’m back from Brazil. I’ve gone to the Mikvah. And today I had my stomach marked by a stoma nurse. Where to begin….

As for my whirlwind trip to Brazil, it was indescribable. I’m serious. I am really unable to describe the trip. My head is still spinning. It was a time of meditation, prayer and healing. I’ve never been that quiet for that long in my life. I actually sat in meditation for 3 hours at a time (I’m not saying that my mind was quiet – but at least my eyes and mouth were shut) and I prayed more than I have in my life. I experienced crystal beds and spent time underneath an exquisite waterfall. I have too many stories to write.

Unfortunately, I picked a crazy time to go. Just the week before we got there, Brazilian TV ran a huge segment on John of God. So – Brazilians decided to flock to the Casa when I was there. On our first day there were more people than my guide, Steve, had ever seen on one day. I would guess that there were far more than 1000 people there.

My tour guide, Steve Rozengauz, was phenomenal. He was a Russian New York Jew. Steve’s group was a kind of wacky combination of folks: we had a Brazilian celebrity actress, Fortuna (Tuna) Dwek; a Chicago-born now Sao Paolo TV series writer (he is the head writer for an NYPD type show that’s based on the Sao Paolo police dept.); a Russian born New Yorker and a Missouri-born Southern Californian. It was pretty funny walking around with Tuna because workers in the shops would stop and ask to have their picture taken with her or would ask for her autograph. She was quite flamboyant and a real love. I could tell you all sorts of stories about the makeup of our group and our mother-hen leader Steve, but honestly, it’s just too difficult to capture the flavor of our group or for anything that took place there in mere words.

There were many many people that I met who had stories of their healing and the healing of others. However, I was informed that I should not expect that Abadiania is the McHealing of Brazil. Healing takes time and although John of God has healed people on the spot, that is very very rare.

So – the big question that I keep getting asked was “did it work?” I really don’t know how to answer that. Do I think that on Wednesday they’ll open me up and with stunned expressions announce that there is no cancer in my body? While I would love to say that I believe that will happen, I am not holding my breath. However, this experience did help me to become more spiritual, quiet and focused on things that will help me to heal and make my body inhospitable for future recurrences of cancer. I have a whole new appreciation for things that I can’t see or touch. Abadiania is a wonderful, energy filled, spiritual place.

One final note on my trip, as I was getting on to my plane yesterday to fly from Atlanta to SFO, I was thinking to myself how much I wanted to have peace in my life and was debating how I was going to fully incorporate this into my every day actions. As I was about to get my ticket scanned so that I could enter the plane, I looked down at the name of the person who was directly in front of me and the name on the scanner read “Shalom” which means “peace.” What a nice little wave from above…

I arrived home yesterday and began my preparation for going to the Mikvah with Miriam Ferris, a local Rabbi’s wife. I am too tired to write about the Mikvah (please feel free to google it), which I went to last night at 9 pm. It was an amazingly powerful experience.

Today was not a good day. I spent 5 hours at Stanford with Pat. As I mentioned earlier, I had the joy of having my stomach marked in case they need to give me an ostomy on Wednesday. They needed to know where to put it. The surgeon has promised that he’ll do everything that he can to avoid doing this, but he won’t know until he gets in how strong my colon will be and whether it will be able to be reattached. He thinks that it will be unlikely that if I do have an ostomy that it will be for more than a few months. I wanted to be strong, but having my stomach marked was almost too much for me to bear.

We also spent quite a bit of time trying to ensure that the surgeons were aware that we are asking for some state-of-the-art tests that they generally don’t do at Stanford. It’s not easy to do things outside of their normal course of business. But I want to live and so I am demanding that they send my tumor away to a couple of different labs for additional testing. Unfortunately, it’s not inexpensive nor easy to do this – but this is my life. And I must do everything I can to prolong it.

I am really too exhausted to write anything else. I am working so hard to keep my spirits up and look for the positives in all of this – but it’s really difficult.

People keep asking what they can do. What I really need from all of you, and from everyone you know, are your prayers on Wednesday. What I did learn in Brazil was the tremendous power of faith and collective energy. It’s very scary that I will be heading into surgery not knowing how I’ll wake up. But now it’s time for me to stop trying to control the situation and just let go. I’m asking for your strength.

While I was down in Brazil, one of my new friends reminded me of the “Footsteps in the Sand” poem by Mary Stevenson. I find it inspiring as I head into this difficult surgery and for the few of you who do not know what I’m talking about, here it is:

One night I dreamed I was walking along the beach with the Lord.
Many scenes from my life flashed across the sky.
In each scene I noticed footprints in the sand.
Sometimes there were two sets of footprints,
other times there were one set of footprints.

This bothered me because I noticed
that during the low periods of my life, when I was suffering from
anguish, sorrow or defeat,
I could see only one set of footprints.

So I said to the Lord,
“You promised me Lord,
that if I followed you,
you would walk with me always.
But I have noticed that during
the most trying periods of my life
there have only been one
set of footprints in the sand.
Why, when I needed you most,
you have not been there for me?"

The Lord replied,
"The times when you have
seen only one set of footprints,
is when I carried you."


My dear friend Stacia will plan to use this blog later this week to inform all of you regarding what happens on Wednesday. Thank you again for all of your love and support.

Tuesday, July 13, 2010

The Journey Continues

Before I talk about my medical diagnosis and my spiritual journey, I wanted to share with all of you something that happened yesterday. I arrived home to discover a letter from a former colleague of mine. In it was a lovely necklace with a medallion of Saint Peregrine (the patron saint for cancer patients). Along with the necklace was a note indicating that my colleague was in a neighborhood grocery store and had asked the man who handled the fruits and vegetables to put me on his prayer list. In response to her request, he took this medal off of his neck and gave it to her to give to me. Apparently, a friend had given it to him before his colon cancer surgery 3 years ago and now he is totally clear of cancer. He told my friend that he is healed so he was giving it to me so that I will be healed as well. This completely took me by surprise and I am so very grateful for his kindness. But, this is not the only example of the kindness of strangers (and many many many friends). There is something about this diagnosis that has brought out the most beautiful and loving behaviors in others. I feel blessed that I have been witness to the best in human nature.

Now – I think it’s probably time that I caught all of you up regarding my latest diagnosis. Unfortunately, I now have Stage 4 colon cancer. It has not only moved into my female area (for the delicate among you), but has also reappeared in my colon at the location of my original colon cancer surgery. They have also determined that my form of colon cancer is the more aggressive type of colon cancer. They are not sure if the two cancers are physically connected or if they are in two separate locations. Unfortunately, they will not know very much more than what I have outlined until they go in and look around.

So – on July 28th (please put this date on your calendar to send strong prayers my way), I will be heading to Stanford for major surgery. First, they will look laparoscopically to determine if there is any more cancer inside of me in addition to what they could see on the PET and CT scans. If there is more cancer, then they will not proceed with the surgery, but rather will start with chemo to try to blast it out of me and follow the chemo with surgery. If, however, I only have the 2 spots mentioned above, then 3 separate surgeons (gynecological, colorectal and urological) will then proceed with major surgery. Unfortunately, I will not be looking very good following the surgery. I am not going to go into the possible things that could happen, but let’s just say that I really really wish that I wasn’t doing this surgery.

Once the surgery is complete, I will most likely begin an extremely tough chemo regimen in addition to radiation. They are looking at giving me Irinotecan and potentially Avastin. Not only will this suppress my immune system, but it may also result in me losing all of my hair. I know it seems so petty to worry about my hair when my life is at stake, but my hair is what made me look normal to my kids over the past couple of years. I so worry that if I become bald that it will scare them more than they already are.

I am devastated. I am scared. I want my life back. This is not like having concerns with money or a job or your children. Those things can be changed. You can move, you can quit your job, you can give time outs to your children or at the extreme, you can just simply run away. But, I can’t run. I can’t escape. It goes with me everywhere. I keep asking “why me?” But there is no good answer. I know that it doesn’t help to ask the question, but I can’t stop asking it. I’m so jealous of everyone else. I want petty problems. I don’t like having to think about my health every moment of every day. I am so very tired and so very sad.

However, I feel very fortunate to have the top surgeons at Stanford lined up to work on me on the 28th. For example, Dr. Andy Shelton (my colorectal surgeon) is known as the surgeon who takes the hardest cases and treats his patients as if they are members of his family. Interestingly, his physician assistant ended up spending over an hour with Pat and me last week to talk about how to get through all of this in a holistic way. When I told him that one of the things that I was focused on was nutrition, he agreed that while nutrition was important, he said that I also needed to focus on feeding my soul.

So – what do I do? How do I deal with this profound challenge? I have lined up the best surgeons and one of the top oncologists. And – most likely I will get a second or third opinion on my chemo protocol prior to starting treatment. So what can I do now to help my body to heal itself?

I know that over the past 2 years I have alluded to my spiritual journey. I have done a lot of work on that front, but this most recent diagnosis has brought me to a whole new level of effort. The gravity of my situation cannot be ignored. So I am not only doing a lot of internal work to bring peace to my life, but I am also reaching out to others who are farther along the spiritual journey than I am.

This next part I have debated even writing on this blog, since I know that so many of you will think that I’ve lost it. But hell, I’m fighting Stage 4 colon cancer and I have 2 young beautiful children, so I’ve decided that you will understand why I am doing what I’m doing. And so, I will share my plans for the next part of my journey with all of you.

I am going to Brazil next week to see John of God. Ok – I’ve said it. I have decided to meet with an internationally known healer to ask for his help in healing me. Many of you may have heard of him (I’m sure many of you are googling him right now…) I have been told about him several times over the last couple of years, and I always found it to be an interesting idea, but I never seriously considered going.

But, things have changed. About a week ago, it was strongly recommended to me that I go and see John of God prior to my surgery. That seemed completely crazy. How could I possibly put together a trip BEFORE my surgery (the surgeons wanted to operate within a few weeks.) Then, a day later, a dear friend of mine offered to give me his airline miles which were expiring in September so that I could have a free flight to Brazil. Then, one of the official guides offered to bring me at a very good price because he was inspired by my story. Then, a business colleague of Pat’s went to the Brazilian consulate and pleaded with them to expedite my visa (which they are doing). Furthermore, my children were already going to be out of town visiting my parents that week, so there were no childcare issues. The door opened up to me and so I’ve decided to walk through it. I am nervous, excited and hopeful.

So – off I go on July 19th to embark on this healing journey. I will return on the 25th and will plan to rest for a couple of days prior to my surgery on the 28th.

In addition to my upcoming adventure in Brasilia, I am also exploring Jewish activities that will help me on my spiritual journey. For example, I am scheduled to go to the Mikvah to pray with a local Rabbi’s wife when I return prior to my surgery. Apparently, this is a very powerful time for prayer. I’ve never been to a Mikvah, but I am now open to so many things that I would have dismissed such a short time ago.

What has been one of the most difficult things is that physically I feel great. Until this diagnosis, I had no idea what ugliness was inside of me. It is difficult knowing that I am going to go from feeling just fine, to being in extreme pain. I can understand why some people just choose not to deal with their diagnosis and just see how things play out. But that’s not an option for me. I must continue to do everything in my power to heal – with western medicine, eastern medicine and everything else that’s out there. That is my responsibility to my children.

I choose to believe that this cancer was meant to make me a better person and to help others recognize the blessing of good health, friends and family. I am learning. I am becoming a better person. And, it seems to be having some positive impact on others. I received an e-mail this morning from a dear friend who wrote the following to me: “your life journey has helped bring me closer to all that matters in my life. You saying “yes” to this adventure (Brazil) and living fully your life now, is inspiring to me – propelling me forward on my path, sparking me to consider the “yeses” in my life with renewed gusto.”

So my journey continues. I want to thank all of you for the important role that you have played thus far in my travels. I have received countless beautiful messages that have inspired me and given me strength. Although I haven’t had the ability to respond, please know that I am so very grateful for your continuous love and support.